There is good stuff going on behind the scenes in the FASD world. I was at a meeting yesterday that is a group of people called the Adult FASD Provider Network that a man has organized. There were people from the Hennepin County Public Defenders office, Ramsey County, several social service organizations who work with adults in treatment and counseling roles, MOFAS, and parents. If you have some ideas of other organizations or people who could sit at the table, let me know.
The group is going to try to address some issues that adults with FASD face, like the major lack of diagnostic clinics, transition issues, facilitate training for service providers, networking opportunities for providers, develop a screening that providers can use and several other areas. It was a great meeting, full of people who are passionate about FASD and the people who are impacted by it.
Why am I on it? Because in less than 6 years, Akila will be a legal adult, and that scares the crap out of me. It is hard enough to get her services as a child with brain damage and issues, let alone when she is a legal adult who looks totally "normal", but is still making dumb mistakes.
I am very thankful that there are some people who are working on organizing things like this since there is such a need.
1 day ago