We don't qualify for a Personal Care Attendant (PCA), and I desperately would like one. I have checked out all angles, and it would be cheaper for me to just hire a sitter to hang out with her when I need it, but can't really afford to do that very often. The dance recitals were this weekend at Dance Endeavors, the studio I work at that my friend owns, and the studio that Akila takes dance at. So Akila was dancing 4 dances in two of the three recitals.
The recital is just over three hours long, isn't that ridiculous??!!?! I have finally talked my friend Juli, the owner, into changing the recitals for next year so they aren't so long! Yahoo. Anyway, the dancers have to stay in a backstage class room the entire show. This is impossible for Akila, it is hard for most kids, but impossible for Akila. Normally, she comes out a thousand times and finds me at the ticket table where I am managing all the logistics (tickets, concessions, flower sales, volunteers, etc.). This drives me nuts as she is very demanding, and can't wait until I am done talking with a parent or customer. It looks really bad when she comes up and calls me a retard in front of a parent.
So this year, I hired my 14 year old neice Natalie who dances at a studio in Lakeville and has for many years. She knows Akila, and is experienced in recitals and the back stage stuff. She brought her make up kit and did Akila's make-up and just did a fabulous job with her. And it is hard work. Keeping up with Akila is seriously hard work, and at a dance recital, she is hyper to the max. Natalie was awesome and made the recital so much less stressful for me, and so much more enjoyable for Akila. Thanks Natalie, I love you!!
Here are some pictures, the first two are of Akila and Natalie, and there is a picture of Imani with Akila as well at the bottom:
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