As some of you know, Akila has Turner Syndrome on top of her FASD. The two are totally unrelated, but I have always said they are a nice match. Girls with Turner's are missing their second X chromosome and have issues with puberty, infertility and many other areas.
I have been in a panic the last 1 1/2 hours, searching the internet for more info on Turner. I just found this statement, "Menstruation can occur but this is not an indication of fertility". I am so relieved. Too much info? Sorry. But I'm freaking out. Most girls with Turner's do not get their periods. But Akila never goes with the flow. Get it?
About Me
- Psycho Mom
- North Minneapolis, Minnesota, United States
- My name is Barb and I am a teenager at heart who is married to Michael, an Accountant. We have 4 adopted children, Akila-12, Imani-11, Hezekiah-10 and Zeke-9. I am a youth worker by profession but currently staying home attempting to manage our household. My hope for this blog is that it will help me to avoid cleaning my house (I actually don't need help with avoiding housework) and give me some serenity (I do need help with this). My oldest child, Akila, has Fetal Alcohol Spectrum Disorder (FASD) and that is what I will focus on in this blog.
My Blog List
-
-
What Now?2 years ago
-
-
Hey, 2020!4 years ago
-
-
What About My Birthday?6 years ago
-
New Blog Site8 years ago
-
Sometimes, God Draws a Veil9 years ago
-
They Just Don't Get It . . .10 years ago
-
Pelatih Golf10 years ago
-
-
-
-
-
3 comments:
I didn't know about Akila's Turner Syndrome. I have had two students with Turner Syndrome and a friend of mine adopted a daughter from Korea whom they later found out had Turners.
What an adventure of discovery our lives are...And I suspect that mine are not finished surprising me...
Our girls were 11 when they started menstrating, they also have FASD, because of their rapid growth after we brought them home we were surprised it didn't happen when they were even younger. Because of their delayed cognitive development I had bought a book geared toward the younger girls, "The Body Book", that explained with pictures what was happening, I still don't think they really get it. They were very irregular for the first couple of years, we made sure they always had at school extra supplies, extra undies and either a spare pair of jeans or sweatpants in case of surprises. Its not easy or pleasant but you will make it through this, so will Akila, breathe....
Oh wow. We have the same problem, but in reverse. Our son in addition to his AS has Klinefelter's syndrome, where he has an extra X in the XY makeup. Best to you gals. Always something...
Post a Comment