For her, it doesn't phase here when her para or teacher are gone for a day. Or if they mess with the schedule at school due to testing or something else. You would think it would, it does for the majority of kids with organic brain damage (whether from prenatal alcohol exposure, trauma and neglect, attachment issues or what have you). She does actually really well with transitions, especially at school.
Can't remember if I have written this before, but she is having one of her best school years exactly due to all the transitions in her day. Most kids with FASD really struggle when they hit middle school and have to switch to a different teacher and class every hour or so. Not Akila, this is the perfect set up for her. Why? Because she does not get super comfortable with one teacher and one group of kids. Typically each year, November is when she starts to struggle more and has a hard time, after she has the teacher figured out and she settles into her schedule. Well now, she is changing every hour, and her behavior has not been as rough as in the past. Although at home it is the worst ever. Sigh.
But I can't figure out the reasons for her good days and bad days, or I mean good weeks and bad weeks. She snapped on Dec. 29th, after nearly two decent weeks before that. Again, I like to remind you, that her decent/good days or weeks, would horrify the majority of parents in our world. They are not easy days or weeks, but they are tolerable. She had 35 EXTREMELY HORRID days in a row. Never before have we had that many HORRID days in a row, they were so bad they are now classified as EXTREMELY HORRID. We have been very close to that with bad days, but not HORRID, or EXTREMELY HORRID.
Then she got sick on Wednesday, Feb. 1st, and has been tolerable for the most part since. Some ask if it is due to her hormones. I don't think so. She has been like this since way before pre-puberty or puberty time. It is not food related, have tried that. I thought about the lunar effect, but her behavior has been good during this full moon, maybe that is it, she is better behaved on full moon days.
All I know, is that I am thankful that last week, there were only two days that she hit and kicked and pinched and punched and bit me. Unfortunately, this morning the decent streak of one week seems to be over. But I am thankful for the brief reprieve.